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Sunday, January 25, 2009

Update on Ella

This past week has continued to be very difficult for us and for Ella as far as feedings are concerned. Things have not significantly improved like we had hoped and the doctor agreed that after all the medications she has been taking we should have seen more of an improvement than we have. They don't feel like we should wait any longer to see if things get better and neither do we so Ella is scheduled for a scope and pH probe for this coming Wednesday, January 28th. We are really praying that we will have some answers this week about what is going on. We should get some initial results immediately after the scope and then there will be more results a week or so later after they have time to review the biopsies. Ella will also have a pH probe done, which to my understanding they will put a spaghetti size tube in her nose that goes down into her stomach to measure how much acid is being produced. She will come home with this and have to have it for 18-24 hours and then we will take it out and return it to the hospital for results. That should be loads of fun!

We would ask that you please be in prayer that we are able to get some answers as to what might be causing all of Ella's feeding problems this week. We are nervous as to what those answers might be but at the same time very hopeful that having this procedure done could open the door to positive outcomes. We know the Lord is faithful and even though lately times have seemed quite dark we know there is a light at the end. We are holding on to that hope and so thankful that we have a powerful God on our side.

So that is the new plan as of now. Even though we are doing the scope this week we are still keeping our appointment in Feb. for the Upper GI. In my last post I think I said it was on Feb. 6th but I meant Feb. 4th. Sorry, all of my days and appointments run together sometimes. We'll keep everyone posted this week as we find out more info. Thank you for loving us and praying for our family. We definitely feel it and are so blessed by all of you!

11 comments:

Anonymous said...

We love you.

Jess

amber dayton said...

Praying for answers soon for you guys! I know that our situation was not the same, but I feel so much for you after going through Maelyn's first year of NO sleep & reflux issues. She too had the scope & pH probe procedure done & it did give us some answers - I will pray the same for you guys! I know it's so tough not knowing when it will all get better. Love you guys!

Rene' said...

Hello Amy,

I am friends with your sister-in-law Amy Caire & go to church with your mother in law in Kansas City. I just wanted you to know that my family is in constant prayer for Ella and everyone in your family.

Rene' VonMoss

Mere Ware said...
This comment has been removed by the author.
DCVol said...

I just want to jump thru my computer screen right now and hug you guys....I am just now catching up on your blog because of B's lovely hospital visit and our move, but I am re-living my life by reading your blog. B was exactly the same as E~ he would only eat when he was asleep, would only feed in his room with no distractions and me rocking him with my eyes closed (if my eyes were opened and he opened his eyes, he would stop sucking). Talk about MADNESS Amy~ I am so inspired that you still have your sense of humor because it all made me very crazy and angry. Reflux is just the worst, worst, worst when it comes to feeding issues. Of course they don't want to eat when it hurts their tummies so bad~ bless he sweet little esophagus. We did the pH probe and it is just like an NG tube, so don't worry too much~ you will just push a button when she is sitting up, laying down, coughing, spitting up, etc. I wish so, so, so badly that I could be there in TX to hug you and plug in some #s in Rick's spreadsheet's....you're such an accountant RC Cola :)! This is a novel, but I just had to let you know how much I love you guys and am praying for you all! There is just no way to describe the stress of parents who are having such challenges with feeding and trying to grow their precious baby. Hang in there~ there are better days ahead, I promise. Love, Kelly

Mere Ware said...
This comment has been removed by the author.
Jamie Ridgell said...

We are praying for you every day and will be praying tomorrow that the scope procedure will give you some answers that will help sweet Ella. We love you guys!

Nancy Giurlanda said...

You are in my thoughts and prayers every day but especially today. I am praying for answers for sweet Ella and peace of mind for you. I love you all very, very much.

Abbie said...

You have been on my mind and heart a lot lately. Just know you and your sweet family are in our prayers.

Love,
Abbie

Brooks Inc. said...

Amy-

Always praying for you all!

Love you-

Becky

Amanda Pittman said...

Carder Family -
Praying for you all here in Abilene. I am blessed by your honesty and hearing the cries of your heart. And you all still make me laugh - "going dark" and spreadsheets. That's some funny stuff. Love you guys. Hurting for you guys. Praying for you guys.
Love,
Amanda and David.